After a really bad couple of days, today was much better.
Cindy managed to get up after lunch, then I pushed her in her wheelchair into town. We went to Capaldi’s for coffe, where – lo and behold – we bumped into the children who had gone out with Lance and Mary.
Cindy stayed up for tea and is now watching Daziel and Pascoe. Lovely to have her downstairs!
Mick, Cindy’s colleague from Abbey Grange came round to see Cindy this afternoon, with his wife Susheila. Cindy was still in bed unfortunately. She hasn’t got out of bed at all today, has been feeling very tired, breathless and achy.
Just taken Cindy up to Brian’s for a haircut. Her hair has gradually grown, till now it looked a bit mad and wild. Much better now, short still, but it looks deliberate!
She didn’t get up today till 6ish – feeling very tired and breathless.
The rest of us walked round the city walls with Phil and Marcia and then went for pizzas at La Piazza. P+M left at about 3. Last visitors for a while – we should have a chance to settle down and sort our selves out a bit before school starts next week. Lovely to see everyone, but a bit busy.
Phil and Marcia are visiting (with Claudia and Lucas) and we’ve just finished playing cards – just like when they used to live in Yarm and we were in Acomb. We’ve also been eating Betty‘s cake and drinking Betty’s coffee – what we did back then! More children now though.
Rose, Claudia, Phil and I went on a Breadcrumbs trail earlier today, while John, Lucas and Marcia went to the NRM.
During the late afternoon, we got over excited to the point of barely being able to watch the tv – exciting finish to the 4th Test.
Cindy has been very tired and achy today, she got up around lunch time, and had to go back to bed before supper, and hasn’t eaten properly this evening.
Nothing particular during the day – a bit of tidying up, putting away the washing… Toby went off to Monk’s Cross with Tom and Josh, but didn’t buy anything.
John and Rose went over to Tom and Anna’s for a short time in the afternoon and I pushed Cindy into town and we had coffee in The Pantry – opposite Clifford’s Tower.
In the evening we went and had supper at Lance and Mary’s. Their Danish friends Ole and Lillian are visiting.
Good question, but the answer isn’t so good.
She’s gradually getting more exhausted and finding walking around more and more difficult. She uses oxygen for getting up stairs and often at other times too. It takes her a long time to get going in the morning, but she’s around for lunch, afternoon and the evening. She needs to use the wheelchair for longer trips out of the house. She’s had nausea on and off for the last few weeks, which seems to under control at the moment.
She’s going to start on a new drug soon – Tarceva. This is a new, unlicensed drug that is only available on a “named patient” basis. Dr Bottomley says that there is probably no-one else in the world who has used this drug to treat the particular cancer that Cindy has, but it has been effective against some lung cancers, so it’s worth a go, paticularly as the side effects aren’t too bad.
Cindy, of course, is still being very positive about things and does as much as she can.
No entries recently as the computer hasn’t been working properly.
To catch up:
Wales – rock climbing;excellent walk just E & Will – I nearly slid down the mountain; Ffestiniog Railway; home.
Toby to Ilam Hall for week with YHA watersports activity holiday. He had a very good time indeed.
Mandy and David to visit – C&E stayed at Marriott Hotel with them to celebrate Mandy’s birthday, Amy looked after J&R. Also went with them to La Piazza.
At the moment James, Emma, Jacob, Sam and Hannah are staying with us. We’ve been to the beach today. It was blowy and coldish, but fun.
Some people went off to Portmerion, but Mary and all 5 of us went off to Harlech Beach again. Not quite as sunny, but still lovely.
Katharine and Simon cooked a lovely barbeque this evening, then Will and I went off to explore climbing rocks for tomorrow’s planned morning climb.
Will, Toby, John, Rose and I set off on the Snowdon Horseshoe; Jane, Andy and Mary went on the PYG and Miners trail to Snowdon; the rest wanted to go on the train to the top. There were vague plans to try and meet at the top.
The train was booked up until 5pm, so they went on a different train around a lake. John’s sunburn was really bad, so he, Rose and I went down to a lake and waited till Will and Toby came down the hill. Toby walked Will into the ground apparently, limitless teenage energy! Mary, Jane and Andy did their walk as planned.
We walked down to the stream in the grounds and found a waterfall with a fantastic pool at the bottom of it. The pool is deeper than I am tall; big enough to jump and dive into, and have a swim of about 3 strokes across and 10 strokes round. Rose was first into the water, as she slipped, then John and I went in.
Water was freezing!